Friday, February 21, 2025

MGG - 6.18 - Gloria - health (1)

I really don't know what to title this one.  "The Beginning of the End?"  Yes, this marked a significant change in Gloria's health, but most of it really wasn't related to her death.  Yes, it kind of marked the start of my career as Gloria's caregiver, but she always *had* had health issues.

Number Two Daughter was moving house, so we were babysitting the kids.  We took them to a movie.  They wanted to see the new Transformers movie.  Which was in 3D.  And was also around three hours long.  Wearing 3D glasses, for so long, is somewhat disorienting.  Coming out of the theater, and crossing the parking lot, Gloria slipped on a patch of slimy mud that had been the bottom of a drying puddle.  She went down.  She didn't get up again.  When I got to her she was in an awful lot of pain.

I drove her, and the kids, to the hospital.  We called Number Two Daughter, who came and got her kids.  It turned out that Gloria had broken her shoulder: shattering the top of the humerus into four pieces.

It was, of course, extremely painful.  As with any joint break, it took an awfully long time to heal.  In the initial stages of healing, Gloria was in the big armchair/massage chair that I had won at a trade show, very early in our marriage.  It allowed her to sleep in a semi-reclining position, and ensured that she didn't roll onto her shoulder during the night.  However, Gloria was not able to manage to get out of the chair by herself.  So, during the night, when she needed to get up to the bathroom, she had her cell phone with her beside the chair, and would call me on the house phone, so that I would wake up, come downstairs, get her out of the chair so that she could go to the bathroom, and then put her back in the chair, and go back upstairs to bed.

It was her right shoulder that was broken.  While everyone was extremely sympathetic to her plight, and her pain, when they went to comfort her, all of them, universally, patted her on her right shoulder.

She went to a physiotherapist over a period of about a year.  The physiotherapy seemed to help a bit at first, but then she hit a plateau.  We went back to the doctor, who eventually got more medical imaging of her shoulder, which determined that her rotator cuff was torn, and therefore physiotherapy was contraindicated.  Her right shoulder was somewhat restricted after that.

While it can't be said that this problem caused the further medical problems, this was the beginning of a long string of surgeries and medical issues.

Gloria had had problems all her life with IBS, Irritable Bowel Syndrome.  She also had a hiatus hernia, which caused gastric reflux, frequently seriously painful.  Her stomach and gastrointestinal problems seemed to be getting worse.  And then one day, she seemed to have heart or lung problems, so we went to emergency.  It turned out that the hiatus hernia had opened up sufficiently that her stomach was actually in her chest, where it is not supposed to be.  It was impeding her heart and lungs, because of the stomach occupying the space that they should have used for normal movements.

The hospital did surgery on the hiatus hernia.  However, there are two ways that you can do this.  One is to completely open the abdominal wall, and do the surgery with the abdomen exposed.  The other way to do it is a kind of keyhole surgery, using four holes, and special manipulators through the holes to reposition organs and sew up the diaphragm.  This was the choice of surgery in Gloria's case.

Gloria has always had problems with wounds taking a long time to heal.  In this case, the even the small surgical holds that were used for her diaphragm surgery, reopened after the surgery; a process known as dehiscence.  We went to the ambulatory care clinic, which we tended to refer to as the wound clinic, and, revisiting two or three times per week, had absolutely wonderful care from the nurses who viewed, cleaned, packed, and explained all the processes, in caring for the wound over a period of at least three months.  Finally, on one visit to the wound clinic, when Gloria was not feeling very well, the nurse treating her on that occasion said, "Congratulations, your wound is finally healed.  Now go straight to emergency, because you're very sick!"

So, we were back at emergency.  In this case, the problem was not determined right away, and so Gloria was admitted to hospital, and I went home.  During the night, the nurse who was on shift where Gloria was, was someone that we knew.  She knew that Gloria tolerated an awful lot of pain, and that if she was complaining of pain that it must be extremely painful, and so alerted a doctor, and insisted that Gloria be seen, since something was obviously seriously wrong.  I got a call at 7:00 in the morning.  The doctor had determined that the previous surgery had completely let go, and the surgery would have to be done all over again.  They transferred her to the Vancouver General Hospital, and did the surgery with the abdomen fully open, rather than trying to do the keyhole surgery again.  The surgery, in this case, took at least eight hours.  Gloria ended up in the post recovery post-surgical board with at least a dozen tubes and wires running in and out of her body.

It was a while before Gloria could go home.  And then the wound dehisced again. So it was back to the wound clinic, for another three months, to get that wound healed up again.  In this case, when Gloria went home, she had one tube still running out of her stomach, left there to stabilize her stomach in a position where an artificial scar would be formed inside, anchoring the stomach in position so that it wouldn't move again.  I had to clean her tube and wound twice a day, in order to prevent infection.

And then, roughly a year later, while she was still occasionally visiting the surgeon to make sure that her internal organs were settling into place properly, she got an inflammation around the surgical site.  Again.  We went back to the General, seeing the doctor, who sent us over to the emergency ward, immediately, to have this inflammation lanced.  It turned out that there was a piece of surgical suture, that had been in place from either the first or the second surgery, which the body had finally infected and rejected.  So, once again, it was back to the wound clinic, for another three months of sessions two and three times a week.  We were getting quite familiar with the wound clinic staff by this point.

Sometime after (and, once again, there was no causal link), there were some troubling indications, and Gloria was sent to an oncologist.  In pursuing the situation with regard to the cancer, it was also determined that there was a problem with her thyroid, so she was seeing a thyroid specialist at the same time.  Nothing was ever really determined about a specific problem with the thyroid, although she was put on hormone replacement medication, a synthetic form of the hormone that they thyroid normally produces to give you energy.  So, once again, two things were going on that seem to have seemed to possibly be related, but actually had no relation to each other, as far as anybody could ever determine.

The cancer was Non-Hodgkin's lymphoma.  This was diagnosed, but the oncologist wanted to get more details about it, so Gloria was referred for a PET scan.  As it happens, I went to UBC just after the TRIUMF cyclotron was put into operation, where PET scanning was invented.  So I knew something of the situation and process.  However, due to some kind of administrative mix-up, Gloria was delayed in terms of being scheduled for a PET scan, and so it was some months before she was actually scanned.

The PET scan process is quite interesting.  The process involves being injected with a sugar solution, where some of the component atomic particles have been replaced with positrons.  Because it is sugar, the sugars end up in areas that are more active than others, and, when you have tumours, cancer is generally one of the most active sites in your body.  Therefore, by looking at where positron radiation is being emitted from, you know where the sugar molecules are collecting, and can therefore pinpoint cancerous sites.  The positron scanning is paired with a CAT scan so that there is a reference as to where the emitting sites are in particular organs in the body.

As well as knowing about PET scanning, as a security maven, I also know something about border security procedures.  The technician doing the PET scanning, when she gave Gloria the injection of sugar, noted that she should not try and cross the border for the next 72 hours. Gloria found this kind of surprising, and I burst out laughing, because I knew why this was the case.  At the US border land crossings, there are extremely sensitive radiation detectors.  These detectors are so sensitive that, yes, anyone who has had radiation treatments, of whatever kind, will set the detectors off.

In the delay between Gloria's initial referral, and the final scheduled PET scan, Gloria's lymphoma had progressed from stage one to stage three.  It was an extremely aggressive form of lymphoma.  This is actually a good thing.  In the same way that a high performance car requires lots of time in the shop to maintain its operation, aggressive cancers are more susceptible to chemotherapy, and therefore, in a sense, aggressive cancers are easier to treat.  Gloria was treated with chemotherapy.  At least six sessions, and possibly eight.  I can't recall anymore.

I can recall that the chemotherapy brought her white cell count down very drastically.  In order to try and boost her immune system, she was prescribed an extremely expensive drug, which did not exactly *increase* white cell production, but did release the white cells earlier than they would normally have been released.  This meant that she did have some white cells in her bloodstream, but that they were primarily immature.  We joked about having to rely on her teenage white cells.

Previous: https://fibrecookery.blogspot.com/2025/02/mgg-617-gloria-glorias-hoodie.html

Introduction and ToC: https://fibrecookery.blogspot.com/2023/10/mgg-introduction.html

Next: TBA

Thursday, February 20, 2025

MGG - 5.52 - HWYD - 555-1212

OK, I might have been a little too subtle.

I posted, "My phone said I had a missed call from +1-604-555-1212.

"Can't quite put my finger on it, but I have the strangest feeling that it was from a scammer ..."

555 is, and has been for some time, a "reserved" exchange in the North American public telephone system (+1-).  No area is ever assigned 555.  For the most part, you will see all telephone numbers on Hollywood/American movies and TV shows are in the 555 exchange, since the telcos know that calls to those numbers don't go anywhere.

There are a few reserved numbers *within* the 555 non-exchange.  At one point various area codes used 555-1212 as directory assistance.

At one point I worked in telecommunications consulting, including some work with telephony, so I know these things.  I tend to assume that anything *I* know is common knowledge.  I *also* know that, these days, pretty much any call you get from a scammer is going to have a falsified number show up in automatic number identification (so-called "caller-ID).  (This is why the advice to block numbers from scammers on your phone is pretty much useless: scammers just generate random numbers, or numbers "near" your number, that they put out in automatic number identification.)  (Even I, with my *extremely* limited experience in telephony, and not being a phone phreak, know at least *four* *different* ways to generate false input to automatic number identification.)

So, when my phone told me that I had a missed call from +1-604-555-1212, I knew that that was impossible.  Being impossible, it *had* to be from a scammer.  So I figured that my colleagues in security would all appreciate the joke.

It turns out, the joke was on me.  As I knew, if I had thought about it for a minute, there has always been a gulf between telephony people, and data communications people.  And, even these days, when "the network is the computer," a lot of techies still don't actually know how the network works.  Even the data network.  So, a lot of them didn't get the joke, and went to work to help me out.  (Sorry, you lot.)


Previous: https://fibrecookery.blogspot.com/2024/12/mgg-551-hwyd-community-policing.html

Introduction and ToC: https://fibrecookery.blogspot.com/2023/10/mgg-introduction.html

Next: https://fibrecookery.blogspot.com/2024/12/mgg-6oo-gloria-introduction-and-glorias.html

Wednesday, February 19, 2025

Job 6:8-9

"Oh, that I might have my request, that God would grant what I hope for, that God would be willing to crush me, to let loose his hand and cut off my life!

Tuesday, February 18, 2025

MGG - 6.17 - Gloria - Gloria's Hoodie

As possibly mentioned elsewhere, my wardrobe, these days, consists principally of free clothing provided by vendors, trade shows, and conferences at which I have spoken.  This is the reason that my wardrobe is predominantly black: vendors have been in love with black for the past two decades, at the very least.  I have lots of black t-shirts, black hoodies, black jackets, and even black socks.

One of the conferences where I got swag was at CanSecWest.  However, I don't have very much of it, because Dragos (or whoever did his ordering), ordered from Malaysia, Indonesia, and other places where men are much smaller than they are in North America.  An awful lot of the swag clothing provided by CanSecWest, even when it was marked as 3XL (three times extra large) would be a medium, at best.  So, I didn't bring home an awful lot of that swag.

One hoodie that I did bring home was, in fact, too small for me at the time.  But it fit Gloria just fine.  And so she took to wearing it, and wore it quite a bit.  It was interesting when people would ask her where she got the hoodie, and what the logo was, and we then had to explain that it was clothing from a conference to which I had proposed a presentation, but it was too small for me, so Gloria wore it.

As also noted elsewhere, after Gloria died, I found that I had lost weight over her period of illness and death.  And then continued to lose weight, over the weeks that followed.  So, having been overweight for pretty much all of our married life, I figured that I should use this head start, and the fact that I was walking everywhere, to try and diet, and lose a bit more.

Shortly, therefore, I was down to a size where I could wear the hoodie again.  So I did.  I still have it, and, mostly because Gloria wore it so much, it could be one piece of my wardrobe that I would have trouble throwing away.  There were also a number of the t-shirts that I had, and still have, that Gloria would wear.  There were a number that were not big enough for me at my highest weight, but which Gloria could wear just fine.  They are now mixed in with my t-shirts, and there are only a few of them that I can specifically identify as being t-shirts that were Gloria's amongst all of mine, as I am now small enough to wear all of them, with some of them being exceptionally large.  But, as Gloria frequently noted, I never care what I wear so the fact that it's oversized isn't a particular issue for me.

I did finally get to speak at CanSecWest, six months after Gloria died.  (It was, in fact, six months to the *day* after Gloria died.)  And I was given another jacket, by CanSecWest, at that particular conference.  By that time, the largest jacket that they had available was, in fact, big enough to fit me.  So, I do have two pieces of CanSecWest swag that I can wear.  And do.

Previous: https://fibrecookery.blogspot.com/2025/02/mgg-616-gloria-monopoly.html

Introduction and ToC: https://fibrecookery.blogspot.com/2023/10/mgg-introduction.html

Next: https://fibrecookery.blogspot.com/2025/02/mgg-618-gloria-health-1.html

Saturday, February 15, 2025

Review of "Wicked"

This is a review of "Wicked."  The musical, not the book.  The movie, not the stage version.  Part one.  (Of the movie, not the review.)

I read the book.  I appreciated the conceit of taking a known story, and looking at it from the other side, but, overall, I found the book to be disjointed, and lacking a central point or theme.  I was somewhat interested in what was added to, and dropped from, the movie version of "The Wizard of Oz."  (I've never actually read the book of "The Wizard of Oz," although I do know some of the changes that the movie made.)  (I must admit that I'm starting to get lost in the derivative nature of this work.)

I saw the musical.  In a rather problematic situation, but I noted the changes made from the "Wicked" book, and I liked some of the songs.  So I was actually rather eager to see the movie version.

The movie version, as spectacle, is impressive.  It is worth watching, as a movie.  However, I find it odd that, with a runtime close to three hours, the character development falters, and is more alluded to than demonstrated.  If you know all the versions (and can keep them straight in your head) you can see where things are headed.  But the spectacle and production does take away from other aspects of the story.  The theme has been narrowed (and, in some places, cleaned up), but is now simply a weak version of "you shouldn't dislike different people simply because they are different," and has lost some of the depth of the "Wicked" book.  The songs have, almost all, been turned into production numbers so lavish that you are a few minutes into them before you realize "oh, yeah, I remember that song, but it's not a song anymore."

I'm still interested in seeing Part Two, whenever it comes out, but I'm not so eager anymore ...

Friday, February 14, 2025

Death Cafe

OK, *that* was marginally disappointing.

The one thing our society refuses to talk about is death.  At a Death Cafe, we can.  I attended a few Death Cafes in Delta, and found them very useful.  So I have been trying to get one going in Port Alberni ever since I got here.  A Death Cafe is not (intended to be) grief support or counselling, just a safe space to talk about death and related issues.  At a Death Cafe people drink tea, eat cake and discuss death.  The aim is to increase awareness of death to help people make the most of their (finite) lives.

So, finally, the United Church offered me monthly space for six months.  Actually, I thought that was a bit much.  I figured that people might *maybe* want to meet quarterly.  To my astonishment, the people who showed up for the first one wanted to meet *weekly*!

So I scrambled around for the entire weekend, and finally got the hospice society to open up on a bi-weekly basis.  And got the word around to all those who showed up for the first.  And got a co-facilitator, in case I couldn't make it some time.  And we had our first meeting tonight.

And precisely zero people showed up.

Well, at least the co-facilitator and I had a nice chat.


But we will still try it again at the Alberni Valley Hospice Office, 2579 10th Ave, Thursday, February 27th, 7-9 PM.  Bi-weekly, so the next meetings will be on Mar. 13 and 27.

https://open.spotify.com/episode/5p1or6CMY1Xj6pQtEPoKHw

https://x.com/DeathCafe

https://deathcafe.com/

http://www.facebook.com/deathcafe

Thursday, February 13, 2025

Job 24:1

Why does the Almighty not set times for judgment?  Why must those who know him look in vain for such days?